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Patient getting worse? Ryan's Rule

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Our story

It started with Mum

If someone had told us a few years ago that we'd be creating a patient advocacy organisation, we never would have believed them.

Like most families, we trusted that if something went wrong, the healthcare system would know what to do. Everything changed when we lost our beautiful mum, Christine.

After seeking emergency care for severe abdominal pain, Mum returned home from hospital. She died the following day from a small bowel infarction. Losing her changed our lives forever.

In the weeks and months that followed, we were left searching for answers. We thought we’d simply be able to ask questions and receive clear explanations. Instead, we found ourselves navigating a complex system of medical records, complaint pathways, government agencies, legislation, policies and review processes that many people don’t even know exist — until they’re suddenly forced to use them.

We experienced first-hand how difficult it can be for families to understand what happened, where to turn for help, and how to navigate multiple organisations, each with different roles, responsibilities and limitations. We also discovered that transparency isn’t always straightforward: understanding what occurred often took persistence, patience and learning to access information through formal processes.

We spent countless hours reviewing medical records, researching legislation, preparing submissions, lodging complaints, and meeting with healthcare leaders, government representatives and elected officials. As our understanding grew, so did our determination.

No family should have to become an expert in complaint pathways, patient rights and government processes simply to understand what happened to someone they love.

The QHW founders

We discovered we weren't alone

We heard from families across Queensland who had faced similar challenges — people who felt unheard, overwhelmed, or simply didn’t know where to turn. We also met compassionate healthcare workers who genuinely cared, wanted to listen, and shared our desire to see positive improvements across the system.

Those conversations changed our perspective. We realised that while we couldn’t change what happened to Mum, we could use everything we had learnt to help other families.

That’s why Queensland Hospital Watch was created.

What began from our family’s experience has grown into something much bigger. QHW is now building practical support initiatives, developing resources, helping people navigate complex healthcare pathways, connecting Queenslanders with available services, and advocating for meaningful improvements across the healthcare system.

Our mission

What we're here to do

  • Explain the pathways

    Help people understand their rights and the pathways available to them.

  • Free resources

    Make complex healthcare processes easier to navigate.

  • Practical support

    Provide and connect people with practical, non-clinical support where possible.

  • A place to be heard

    A supportive community where patients, families, carers and healthcare workers feel heard and valued.

  • Advocate for improvement

    Push for meaningful improvements across Queensland's healthcare system.

  • Learn from experience

    Use lived experience and community feedback to identify gaps and drive positive change.

Not about blame

We believe most healthcare professionals come to work every day wanting the very best for their patients. We also believe every healthcare system can learn, improve and become safer by listening to the experiences of the people it serves.

  • Every hospital presentation represents a person.
  • Every person has a family.
  • Every family has a story.

And every voice matters.

Join our community

Whether you're looking for information, support, or simply a place where your experience is understood, you're welcome here. Real change begins when every voice is heard.